Butterfly Babies.
Sounds pretty sweet and lovely.
Except it isn't.
This week, my sister Jen left me a link on FB to a family whose infant son has Epidermolysis Bullosa. I had never heard of the disease before. I'm not sure that, if I sat for an entire day and tried to imagine the worse disease for a child, that I could have imagined this disease. It is truly that upsetting. You can read more about it here.
I sat and read through the Butterfly Fund site, and felt sick to my stomach. I just sobbed. These children, so beautiful and precious, with skin as delicate as a butterfly's wings.
I cannot imagine not being able to hug and squeeze and cuddle Niamh and Philly. The mamas of butterfly babies cannot do this. That breaks my heart. It puts so much in perspective-- magnifies the gift of a hug before school and a kiss goodnight.
Jen asked me to do something for the families.
I was excited that she asked me to help a cause she feels so passionately about. And, after researching EB and spending a night crying all over my keyboard, I am more than happy to put it in front of my readers/customers and hopefully raise a little to help these children and families.
"Butterfly Baby" will be available Thursday in my shop. All proceeds from this digital stamp for the first week of sales will go to the Butterfly Fund charity. I spent a lot of time drawing and re-drawing and then starting over again for this stamp:). I wanted something not gender specific, sweet, gentle, and perfect for lots of occasions. I have sketches all over my desk; it took a while, but I am happy with my final digi:).
...I think it is my favorite SC baby stamp:) and it is super versatile-- I think just about everyone can make good use of it:).
Please feel free to share on Facebook and Twitter (and your blogs too:). For those of you who share, you can use the code SHAREWINGS for 15% off your order through next Thursday. Be sure to grab the banner below, too!
Thank you, friends.
xOXo
There are no words. As I sit here at 4am feeding my two week old, cuddling him close and stroking his hair, I can't seem to stop the tears. I have never heard of EB and I can not even imagine. Thank you do much for helping to raise both finds and awareness. I don't have much of a following on my blog, but tomorrow I will certainly share this info on it and my Facebook.
ReplyDeleteFor what it is worth, the image is simply gorgeous and I think the gender neutrality makes it so very versatile. I hope I can use it without crying all over my craft desk. Even if not, I will be happy to try. <3
fantasssssssticcccccccccccccc
ReplyDeleteOh my gosh what an aweful disease, I too cant imagine life without those kisses and cuddles. I have shared this where I can and will certainly be buying your super cute stamp, thanks for sharing and caring Krista
ReplyDeleteThat is just heart wrenching.I too could not help sobbing either. I couldn't imagine what these babies and their parents go thru. Thank you for shedding a light on this disease and for your generosity.
ReplyDeleteAaaawww she is so cute, love your whole card. xx Flora
ReplyDeleteI just caught my breath Krista. Really puts life in perspective.
ReplyDeletePaula (PEP)
OMG! Never heard of this, but it is more common than you would think, isn't it! Thanks, Krista, for bringing this to our attention, and for doing something about it. I have the banner on my blog now.
ReplyDeleteHugs, Penny
Such a gorgeous image representing such an ugly disease. Thank you for your kindness and generosity Krista!
ReplyDeleteOMG how totally awesome is this image........I need this & want it soooooo badly & to know thats its for a good cause........well it makes me love it from the heart, if you know what I mean.
ReplyDeleteDo you know my eldest son is 21 & my youngest son is 16, still they both ask me for hugs on a daily basis........well the eldest when he is over which is nearly every day...lol. Obviously Natalie cant ask for cuddles but she gets lots of em every day, I could NEVER EVER imagine not hugging my babies no matter how old they are love & affection is one of the most important things in life, we cherish it with all of our hearts.
Fabulous image sweetie for a fabulous cause you are a total gem & I will gladly buy this to help raise funds sweets mmwah.
Lotsa hugs Vicky xxx
What a terrible dissease!!
ReplyDeleteAnd so great you want to do something for them!
I shared the link on my blog and FB.
wow. made me cry... you are really a wonderful person xxx
ReplyDeleteHello
ReplyDeleteI have put in on my facebook and i will also buy the stamp he is sooooo loveley.
byebye Ine
Oh Krista this is so sad - but really just the tip of the iceberg, there are so many dreadful skin conditions that children live with. I know of two chilren who went to school with my son (a school for children with physical limitations) - one can't ever go out in the sun because their skin would burn and develop cancers, the other has skin that grows at too fast a rate and it has to be painfully scrubbed off every day and creams and bandages applied otherwise there would be layers and layers of shard skin all over their body- imagine having to do that to your child - it really is just so sad - we should be thankful for our healthy children very day, and bless you for trying to do something to raise awareness x
ReplyDeleteWhat a loverly thing to do Krista xx I have friends I know with EB online and will be purchasing it friday when I get paid for sure xx
ReplyDeleteWhat a lovely thing to do, and it's absolutely beautiful. Hope you raise lots of money for the charity :)
ReplyDeleteI had tears in my eyes when I followed your links and read along. I just can't even imagine the pain and suffer that these little angels have to go through and their parents to have to watch. You are doing such a great thing and I have sharing on my facebook blog page. xxx
ReplyDeleteOh this is gorgeous,love the image and fab papers.xxx
ReplyDeletehi hunny ,
ReplyDeletei have to say you are a lady with such big heart .the stamp is soo stunning and realy hope buy it , it would break my heart not being able to cuddle my kids . is there anyway we as crafters could send the butterfly mums a card ?
sending you big huggs jo xxxx
WOW.. so kind for your part give the money to this fundation! Be sure I will have this digi from your shop!! Big hug for a big and human person! Have a nice day, Krista! :-)
ReplyDeleteWhat a big sweet eyes! I love them... in all your stamps.
ReplyDeletexoxoxo Eulalia
Hi there, I just heard about what you are doing through FB. It's awesome what you are doing (and your blog is very cool too!) but I just wanted to point out one thing. EB is not an infection. It is a genetic condition. It's not something you can catch, as the word infection implys. It is something you are born with and something you will have for the rest of your life. And because it is genetic your children also have a high chance of having it too. I just wanted to highlight these facts just so people don't get misled into thinking there is cure or something you can do to stop it happening. I hope I haven't sounded harsh or disresepctful of what you are doing, because that is far from my intent. What you are doing is fantastic, I wish more people knew about EB and the children, adults and families that this disease effects. I know because I am a parent of an EB child :) Good on you for being passionate and spreading the word :)
ReplyDeleteSharmaine, thank you for clarifying that! I did not realize I had used the word "infected." I appreciate your correction!!
DeleteThanks again:).
xx
No problems and thank you. There are a lot of misconceptions about EB, that is catching, that you can stop the disease etc etc. Because it is a genetic disease you just don't know what hand you will be dealt. I see EB as constant reminder that life is precious, to make the most of it and to love more passionately :)
DeleteThank you again for spreading the word :)
Oh Krista - so sweet and for such a good charity. Hugs x
ReplyDeleteGreat image, great cause! Bless you!
ReplyDeleteAwwwwww what a gorgeous image sweetie! It is adorable and just perfect for the cause. It is heartbreaking what these children go through, there was a baby in the ward beside Charlie when he was in intensive care that had this condition and it was distressing to watch and see the heartache both the baby and his parents were in. I will be sharing this on my blog and my facebook page to help you spread the word and to raise funds.
ReplyDeleteLove and hugs
Kat xxx
Krista you are truly special. You are so giving in many ways! The image is beautiful and heartfelt. I can't wait to purchase it tomorrow.
ReplyDeleteXX
Angie
Gorgeous card Angela yet sad circumstances
ReplyDeleteTracey x
www.papercraftjunkies.com
I love the digi it is perfect and on Thursday will gladly purchase this gem..I too could not imagine what it would be like not to hug my girls...I thank god everyday that my girls are healthy and happy...It is awesome of you to do something like this as well...this
ReplyDeleteOh my what a horrible disease (I too had never heard of it) but what a wonderful thing you are doing to help. The digi is just beautiful and I will certainly be getting one. I hope you make lots of sales to help the Butterfly Fund.
ReplyDeleteLynda
Wow Krista,
ReplyDeleteI will most definitely pass it on. You are such a giving person. You are truly one of the good ones on this earth. God Bless,
Crystal
wow it's beauty!
ReplyDeletegrts
frouwke
its absolutely stunning hun and you are such a beautiful and kind person for doing this.
ReplyDeletehuge hugs Lou xxx
OH honey...
ReplyDeletethis is just terrible.
Banner is going on my blog right now for you - and I'll link up on my status to this post as well.
My heartfelt wishes to you, your family and everyone else effected by this.xx
I've shared - not to get the discount but because it's an amazing thing to do. You truly are a very special lady x
ReplyDeleteI read the post about the baby, it broke my heart. I had to stop reading because my eyes welled with tears. I'll be checking out your site thurs. What a nice thing you are doing for the family, thank you for being you.
ReplyDelete))) hugs (((
Lisa
Having just been blessed with a healthy 3rd Grandchild I can't imagine what these children, their parents and Grandparents are going through. Thank you for this small opportunity to help and to be able to send a "hug" in a card.
ReplyDeleteI absolutely adore this digi and even more so because of the cause you have chosen to support. I, also, was crying while reading as I am a mum of 2 (one is only 4 weeks old) and cannot image life without the beautiful kisses and cuddles from my boys. I will be back tomorrow to buy this beautiful little butterfly xx
ReplyDeleteSuch a beautiful image for this cause. I had never heard of this condition before. You can be sure I will buy the digi and share the link.
ReplyDeleteHi Krista. Oh my gosh - I have never heard of this and hope I never have to again. That sounds heartbreaking. Your "Butterfly Baby" is so precious and adorable. I'll be back to purchase one for sure. I'll share this on my blog today as well.
ReplyDeleteHugs;
Karen
WOW... I never knew anything like that exsisted! Thanks Krista for opening our eyes to it, for creativing yet again, another lovely stamp for us to use and for you ever generous and loving Christian heart!!
ReplyDeleteHugs,
Rina
I can't even start to read all about it, I'm in tears with your brief description, unfortunately I have heard of it before. It would truly break my heart if I couldn't cuddle my babies. I can't wait to buy it, I already have the perfect project in mind for it.
ReplyDeleteHugs,
Becky x
Hey Krista.. EB is a very very very rare condition that's probably why you haven't heard of it. My cousin died when he was 4 from it. I wont go into details.
ReplyDeleteMy family and I have been supporters in the UK thank you for supporting it too xx
I love that you created such a sweet digi for such a good cause. I've put the banner on my blog with a link to this post and I will mention it in my blogpost tonight. And of course I will be back tomorrow to buy this amazing digi!
ReplyDeleteHugs Kim
Hi Krista, here's my post where I've shared your "Butterfly Baby" post. Thank you for all that you do.
ReplyDeleteWhy does there always have to be something WORSE than you can imagine?
ReplyDeleteOh my goodness, this reading about this disease did make me cry.... Thank you for bringing this to our attention and for helping raise funds to fight for a cure. Can't wait to buy your digi tomorrow....
ReplyDeleteThank you for sharing this information and making us all more aware of how fortunate we may be. I can't even image how heartbreaking it would be to not be able to hug my sweet little grandson each time I see him.
ReplyDeleteSuch a beautiful image for this cause.
ReplyDeleteGr, Elly
This is awful. I haven't read it all yet, but what you shared in your post is saddenning. :( I've never heard of this before. I would hate not being able to cuddle with my neices and nephews.
ReplyDeleteI'm definitely going to share your banner and this post today on my blog!
<3 Jenn
Oh my goodness! I've never heard of this either. It just sent chills all through me and it is truly heart wrenching! I have no other words!
ReplyDeleteKrista, you truly do have a hugh heart and I am not only talking about this situation of you helping out others. I have read quite a few times where you helped others that were going through hard times. You are truly blessed from God to be able to use your talents in helping out the less fortunate. Your image is perfect but your heart is pure. All of the childhood illnesses are just so heart breaking that it tears your heart out to see these little ones in so much pain. I also visited St. Jude's and came away destroyed at what I saw. God puts us in charge of His little children so I commend you for doing something special for this cause. You are an angel...
ReplyDeleteOn what site can I buy the stamp?
ReplyDeleteA Canadian follower
this brought me to tears too. What a wonderful thing for you to do Krista.
ReplyDeleteYour image is beautiful and in honour of a superb cause. Once again you've shown us a glimpse of the compassion and generosity you hold in your heart. I'll be more than happy to hop on over tomorrow to pick it up. Thank you Krista.
ReplyDeleteI have tears in my eyes, Krista! I cannot even imagine the anguish a disease like that causes for those families! It breaks my heart! And it makes me take pause and remember to be grateful for every hug, kiss, and snuggle I enjoy with my small man and take nothing for granted! Your image is precious and your card sweet as can be! You are such a kind soul, and I will be buying this cutie for sure! Thank you for being you and having such a big heart!
ReplyDelete{hugs}
Regan
Un maravilloso gesto por tu parte el sello es precioso y hay estaré para comprarlo.
ReplyDeleteAbrazos
Posted this on my blog right away! I am eagerly awaiting tomorrow when I can do more to help. Beautiful image, perfect for these kiddos. You are awesome, thanks for bringing these things to light for us!
ReplyDeleteshared on facebook and twitter. You have a huge heart and kind soul. Thank you for shedding light on such a terrible genetic disease.
ReplyDeleteOh my gosh, I cannot imagine the pain those kids must go through and cannot imagine either how heartbreaking it must be for their parents to see their children suffer so much :-((( Such a terrible disease!!! Oh Krista, you are such a generous and loving person with a very big heart! The image you have created for this cause is so sweet and I will definitely buy it to help raise funds. Will put the banner on my blog as well! Hugs Silvie xx
ReplyDeleteoh gosh! this makes me feel so sad, I heard once about this, How heart breaking that a mother can't hug her child. I don't know what would I do without hugging my babies, I hug them all day everyday, I kiss them, I want to cuddle with them all the time. So as a mom, this really made me feel really bad for them.....will buy this image, you did a fantastic job as always Krista!!!!.,...Fabi xxxx
ReplyDeleteKrista, I had no idea about this disease either. I would be heart broken if I couldn't hug & kiss my boy. I'm so happy you brought awareness of this and you will help raise money. I already shared the link on FB and will be purchasing my digi on Thursday to help.
ReplyDeleteThank you so much, you are an Angel!
x0, D
I can't imagine not holding or kissing my sweet babies and how heartbreaking that would be. I will definitely be purchasing this image as it is such a sweet, innocent reminder of these precious babies. Putting your banner on my blog too. Thank you for sharing and giving me the chance to help, even if it is just a small donation.
ReplyDeleteI will post on my blog right away. My heart is breaking after reading about this poor children and there families. I am always hugging and kissing my kids or stoking their hair, holding a hand, we are a touchy feely kinda familiy. We like being close. I find it hard suffering from a chronic pain condition as some days I am too sore to be touched, even the brush of fabric of clothes against my skin makes me cry, I ache to hold my kids and can't. But I am an adult, I know why I can't be held and I know the pain will ease eventually and I'll have a few days where its bareable again. But for a child that could NEVER be held, never know the comfort of their parents arms, is just so heart breaking.
ReplyDeleteThank you for bringing this horrible condition to the light so we can all do our bit for them.
Love and hugs
Dawn.W xxx
Consider it done.... shared everywhere I could possibly do it..... you are a wonderful person Miss Krista...... hopefully this can make a difference for the sweet little children who suffer from this horrendous disease....
ReplyDeleteThank you for explaining this cause, so heartfelt. The image depicts the sadness of this disease so beautifully. Hugs
ReplyDeleteHave no words... Just want to say thank you for helping us to help those families...
ReplyDeletea adorable image for a great cause!!!
ReplyDeleteI shared it on my blog en facebook with a link to this post.
greetings femke
krista this is just so awesome of you. i will def. be getting this stamp. great work.
ReplyDeleteI've shared Krista, (not quite as eloquent as you did), but here is the link http://handmadebytlc.blogspot.com/2012/09/sc-and-eb.html
ReplyDeleteThe photo's are so sad I'm glad to help increase awareness. Thanks for the big heart, the world needs more people like you!
Hugs
Tammy Louise
Thank you for drawing our awareness to this terrible disease. Krista you really do have a heart of gold.You really are one inspirational lady. Hugs Nina
ReplyDeleteI usually don’t share much (on Facebook) but this post really got me…and of course I am buying this stamp since proceeds from this digital stamp for the first week of sales will go to the Butterfly Fund charity. I posted it on my Facebook and also on Scrap of Color http://scrapsofcolor.ning.com/forum/topics/butterfly-babies-sounds-pretty-sweet-and-lovely-except-it-isn-t... btw, it will be great to have more African American Digis from you (we all love Lala, Treads, Frizzy Jynx, Hatress, Lioness, Smashy Curls, and Duck Duck Goose)
ReplyDeleteOh My God. I can't believe that such a disease actually exists! How horrifying for those families! Those photos are so heartbreaking. It was something I hadn't ever heard of, until today. Thank you for increasing awareness and of course I'll be getting your stamp!
ReplyDeleteHugs,
Shannon
Kirsty , that is one beautiful digi and you are one beautiful girl x , Id love to help - i have two grown up girls with aspergers and i don't know what i would have done with help when they were younger .. disability costs in more ways then one . Id love to help x and i think i may have an idea too ! watch this space !
ReplyDeletemuch love
maddy
Wow, I too had no idea this existed. I cannot imagine going through life w/o the hugs and kisses of my little ones or them going w/o, thank you for bringing this to light. I've shared on FB and will be back tomorrow to buy this wonderful image.
ReplyDeleteI can't even begin to imagine the pain these children and parents are going through. Thank you for opening our eyes and for your generous heart Krista! I've shared on FB so hopefully you'll reach a few more and I'll stop by and pick up this awesome digi tomorrow.
ReplyDeletexxAutumn
Wow I've never heard of this horrible disease! That would be just awful! So very sad! You are such a lovely person for doing this to support this disease and help bring awareness Krista! I have shared on facebook and will share on Twitter too! I will definitely be by the shop tomorrow! :)
ReplyDeleteHugs,
xx Tracey xx
I'm so thankful for all my blessings.....so thankful that there are good people (like you)who are so generous with their time and talents, and that your generosity will be helping these beautiful babies. I'll be picking up my stamp on Thursday....thank you, Krista. x
ReplyDeleteSorry.....forgot to say.....I'm sharing on Facebook. x
ReplyDeleteOh, I can't imagine. What a beautiful image you have come up with. You are so sweet. Thanks for a chance to help. I'll be watching.
ReplyDeleteWhat a terrible disease and your image will do so well to help those in their time of need Hugs Denise xx
ReplyDeleteKrista, I'm sitting here with tears in my eyes, I can not imagine what these families go through. I've never heard of Butterfly Babies before it's so so sad..Such a perfect image..Thank you for sharing and donating though the sales of your stamp..I will be buying it to do my little bit.
ReplyDeleteShell xxx
Oh that is so sad I have never heard of EB. Big hugs to you Krista for being so lovely and helping the cause
ReplyDeletehugs Mandy xx
Wish those family`s all the best
ReplyDeleteWarm wishes
Nat
Hello Krista! Love the new design on the blog! :o)
ReplyDeleteKeep it up! Things get better with time!
Waw you really are a wonder lady. Such a cute image, ... and a really sad story. I put your benner in my sidebar on the blog. Hugs1 Mojca
ReplyDeleteIve shared on my blog and on facebook. Beautiful image for beautiful babies. By the way love the look of your blog. So pretty!
ReplyDeleteGab
Thank you for making me aware of such a worthy cause. I will definitely be contributing.
ReplyDeleteHi Honey,
ReplyDeleteThe Butterfly Baby is absolutely beautiful!
Love your new blog set up, can't wait to see Disney pics!!!
We go next week!
Love the butterfly baby. Great you can mean something for other people.
ReplyDeletehi there i think what your doing with your stamps for causes is great love to help will be buying the stamps thanks
ReplyDeleteMY HEART IS RAISING SO FAST!! I am in total loss of words ....I am tearing here.I CANNOT imagine not hugging or kissing my kids.I mean we live off kisses and hugs here.UGH!!!! What a sad and scary disease.I have never heard of this before.
ReplyDeleteI ditto everything Sharman said to you. You have a kind heart and what you do to raise money for others in a sad predicament like this through your art is just a blessing.
I support Saturated Canary organization so I'll be sharing this for sure.
Thank you for sharing your art with us.
((MUAH)) Ruby
where can I buy the stamp, i can not find it. Thank you.
ReplyDeleteawesome new blog design Krista! except you need to add your shoppe button/tag ~ if there is one it is very well hidden *lol* I know my way there though, having shopped tons of your digis ♥ I'll be sure to share ♥
ReplyDeleteHad never heard of this awful illness - it is so very sad. You are an absolute angel for donating towards this very worthy cause and I shall definitely be buying this adorable image. I have shared your article on my facebook page too.
ReplyDeleteHugs xx
Oh Krista this illness is so cruel i watched a documentary about a chap called Jhonny who suffered with it, it broke mt heart to watch, he was in agony every day untill his death.He had a wicked sense of humour!
ReplyDeleteHe was so brave too and raised awareness about it.
The new digi is very cute Krista and i will post about this.
Your doing a great thing with your talent and you deserve the very best!.
Oh this is so so sad, i have shared it on my blog here http://katy-itsmyworld.blogspot.co.uk/2012/09/butterfly-baby.html
ReplyDeleteThank you for doing such a beautiful thing. xx
this is such a horrible illness...thank you for sharing. The butterfly baby is adorable. I've posted the banner on my blog.
ReplyDeleteYou have such a big ♥....God Bless
hugs,
Steph
My great niece Ava has EB. I just ordered this and can't wait to make a card with it. Thanks for supporting these familys!
ReplyDeleteThank you for doing this! I think it is such an inspiration. We all have to remember how lucky we are when things are going well and our families are healthy. Thanks again for the uplifting blog!
ReplyDeleteThank you for supporting these families. It is so hard to deal with any major illness without outside support. It is great for you to bring attention to such a worthy cause!
ReplyDeleteThank you so much for bringing awareness to this foundation, this devastating disease and supporting these family. I have shared the information about these beautiful and delicate children. Jennifer M
ReplyDeletethank you so much for letting all of us know about this horrible disease and the devastation it strikes upon the families. you are right, I truly can not imagine not being able to touch one of my children....
ReplyDeleteI have Tweeted this post and will put your badge on my blog. hopefully I can get to your store soon to help raise funds for this charity.
again, thank you for bringing this to our attention. and please thank your sister as well.
You have a big heart! And that's a lovely thing to have!
ReplyDeleteWe have a charity in the UK for this terrible illness too. It's called DEBRA (see http://www.debra.org.uk/). I'm off to buy your image now! Hugs, Lesley
Thank you for the adorable image that is supporting such a horrible cause. I purchased it and shared your site with others encouraging them to do so as well. I'm touched by your generosity and love. Have a wonderful weekend hugging those kiddos of yours for those that can't.
ReplyDeleteWhat a terrible disease! I want to buy this digi, but I live in the Netherlands, cannot find your shop on your blog. I'll try again tomorrow. I hope you sell a lot of digi's, it's a lovely thing to do! Thanks!!! Greetings, Marlies
ReplyDeleteOh Krista thank you so much for creating such a gorgeous stamp, my cousin had EB I was very young when she passed away but she remains in my heart forever and I remember her so clearly and the way she suffered. I hope you get loads of orders for this great cause I can't wait to make a card up, and I have popped your sign on my blog :)
ReplyDeleteHugs Mandy xxx
I had never heard of this before. What an awful disease. What a great cause.
ReplyDeleteawful disease! but your digi is so cute! youre so talented and kindly person! i already share it on my FB too!
ReplyDeleteI have put your banner on my blog, and linked back to this post.
ReplyDeleteI already comments but I also wanted to say that I did share on Facebook as well. I hope you are able to raise awareness of this awful disease!
ReplyDeletethanks for posting..
ReplyDeleteya lo tengo, me encantaaaaaaaaaaaa¡¡¡¡ espero que se vendan muchos de estos¡¡¡¡¡ enhorabuena¡¡¡¡
ReplyDeleteWhat a sad story Krista, I loved this image as soon as I saw it, and have just been blog hopping and came across your story about how this beautiful stamp came into being.....you are a very caring and generous lady, will put this on my blog hunnie..
ReplyDeleteHugs,
Marjorie
xx
As a registered nurse I see so many inequities in life.... those that happen to children are the worst. What one takes so much for granted, another could only dream of it happening to themselves or their loved ones. With more research, one can only hope cures for these diseases become more common place. I have not personally heard of EB. Thankyou for highlighting such an aweful disease. I LOVE this image and have already purchased it and will link the butterfly fund on my blog. You are very generous in donating proceeds, and I am so sure your contribution will help with those families whose lives have been torn apart by EB. THANKYOU so much Krista XOX Tania
ReplyDelete